Jett Foundation
​
​
The Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
​
We love their Camp Promise summer camp for DMD families, Go! For Duchenne Race, and the Jett Giving Fund which assists families impacted by Duchenne muscular dystrophy in purchasing unaffordable, but vital medical and accessibility equipment like accessible vehicles!
LEARN
​
​
This is a great resource to learn about what is going on in the world of Duchenne Muscular Dystrophy. They are a wonderful advocacy group promoting legislation for awareness and testing. They are active in Clinical Trial Support and Awareness. They have a caring support team and network of families and so much more that we have not even tapped into yet!
Pfizer Gene Therapy Phase 3 Trial
​
​
This is one of the most promising treatments for Duchenne's Muscular Dystrophy and it is on the cutting edge of a breakthrough in Phase 3 of clinical trials! We are speaking with scientists now who are working to develop these drugs. God is moving big mountains to make miracles happen! Read this article to learn more.
Sarepta Gene Therapy Trial
​
​
Sarepta Therapeutics is also working on a Gene Therapy trial that will hope to extend the ambulatory life of DMD patients. We are hopeful that we can get Declan into Pfizer or Sarepta's trials soon. There are age brackets and immunity tests that he must reach before acceptance. These are life changing treatments that will keep him mobile longer. Once he becomes non-ambulatory it is not helpful to do these drugs and he will start to decline. Let's work hard to support the clinical research for these treatments!
